Monika Kaska's joints have been crippled by the degenerative condition lupus, which makes every step of her climb to Toongabbie station painful.
Since the age of 30, my joints have started to disfigure so I can't go up and down stairs normally," Ms Kaska, 34, said.
"At Toongabbie station there is a ramp but even going up and down that . . . I have to go sideways.
"Going up the stairs can take me 10 minutes, down can take about 15 minutes.
Watch our video interview with Ms Kaska below:
"It's difficult . . . It's painful and draining."
The physical stress from climbing the ramp and 26 stairs has worsened Ms Kaska's condition.
She expects she will soon need a wheelchair.
Ms Kaska has campaigned for Toongabbie station to be upgraded with a lift so she, and the one in every five people who have a disability, can easily access it.
She said governments had failed her and the 1.36 million people in NSW with disabilities.
In fact, successive state governments have failed to meet their legal requirement to people with disabilities.
Under the Accessible Public Transport Standards Act 2002, the state government was required to make 55 per cent of all stations "fully accessible" to people with disabilities by December last year.
By the O'Farrell government's own figures, just 131 of the 307 stations in greater Sydney, 42.7 per cent, have been made wheelchair accessible.
Federal Greenway MP Michelle Rowland said the state government had "failed" people with disabilities.
"It is a fact that the NSW government has failed to provide accessible train station access, especially in western Sydney," she said.
But Transport Minister Gladys Berejiklian blamed the former Labor government for the legal quota not being met.
"It is because Labor failed to plan properly and had such a terrible record when it came to building accessible infrastructure that there is so much catching up to do," she said.
Ms Berejiklian said her government had committed $770m over the next four years to make stations accessible to the disabled.
Toongabbie and Doonside were being considered for upgrades, she said, along with the remaining 176 railway stations in Sydney.